Contact us:  48, Montague Road,

Cambridge,

CB4 1BX

 

Email:  info@akpa.org.uk

 
 

Welcome to the Website of Addenbrooke's Kidney Patients Association

 

AKPA is a small, Cambridge-based charity run by volunteers which works to improve the quality of life for the kidney patients of Addenbrooke's Hospital in Cambridge and her satellite dialysis units. We are involved in a wide range of activities including occasional social events and talks by hospital staff on medical advances.

 

AKPA is a registered charity and over 95% of funds raised go towards helping patients.

 

 

 

 AKPA News

 

March 2017

Rare Bird Raises Funds


Dr Meryl Griffiths had the good fortune to find a dipper in her garden. Although not rare in other parts of the country this little bird has only been recorded twice before in Cambridgeshire. The Royal Society for the Protection of Birds was very excited about his appearance and arranged for groups of bird watchers to come and see him. The RSPB practice is to ask for a donation to a nominated charity in return for coming into someone’s garden and Dr Griffiths nominated AKPA.

 

She had visits from groups of Cambridgeshire members of the Royal Society for the Protection of Birds and each time the little bird turned up on cue. As a result she collected a total of £195 for AKPA.

 

Our thanks to Dr Griffiths and her Dipper.

 

 

 

March 2017

Patient View: Technical Problems Persist


Patient View is a national database of kidney patient medical records which most renal units in the UK have subscribed to for some years. It allows kidney patients to access their blood test results quickly and easily very soon after having tests. It also allows patients to share their results and other medical records with their GPs and with other doctors when they are on holiday or working away from home.

 

A group of five kidney patients has been helping to trial Patient View at Addenbrooke’s, but a succession of computer problems has prevented their data from being uploaded to Patient View on a continuous basis. When it is working, the group enjoys seeing their test results appear quickly and they are enthusiastically looking forward to the time when other kidney patients at Addenbrooke’s can benefit. However, until the technical problems are ironed out, and data upload becomes quick and consistent, the system is not yet ready to roll out to all kidney patients.

 

Dr Afzal Chaudhry, Nephrologist and IT Lead for Addenbrooke’s, says, “We are undertaking a lot of work internally to re-adjust the flow of data to the Renal Registry and Patient View. There is still a reasonable amount to do and we are still formulating the fine detail on some of this.” Dr Chaudhry is not able to give a timeline on this work or the eventual roll-out, but he remains very positive and confident that the problems will be overcome.

 

For readers interested to know how Patient View works, please go to www.patientview.org.

 

Alan Craig

 

 

Find more news from AKPA at www.akpa.org.uk/news

 

 

 

 AKPA Newsletter and Forthcoming Events

 

The latest copy of our newsletter, Newsflash:

 

(Please click to download a copy)

 

 

More news: www.akpa.org.uk/news

 

 

 

 

Forthcoming event: The Great Grafham Event

 

(Please click for further details)

 

 

More events: www.akpa.org.uk/events

 

 

 

 Our Latest Fundraisers

 

June 2017

Kay's Page for Penny and George


"This is my gift to my future brother in law George for Addenbrooke's Kidney Patients Association because He deserved the freedom to live happily"

 

Please visit Kay's page for George: www.justgiving.com/fundraising/george-needs-a-kidney

 

 

 

 

 

May 2017

Benedict Peers - Hadrian's Wall Walk


"I am walking the 84 mile long Wall to raise money towards a scanner for the dialysis unit at Fen Ditton which helps the nurses to dialyse patients as safely and painlessly as possible. Please donate if you can."

 

Please visit Benedict's fundraising page: www.justgiving.com/fundraising/BenedictPeers

 

 

 

Find details of all our fundraising superstars at www.akpa.org.uk/fundraising/superstars.htm

 

 

 

   

 

 

 
 

 

The AKPA website is provided by Addenbrooke's Kidney Patients for Addenbrooke's Kidney Patients and is for information purposes only. It should not be a substitute for professional medical advice,

examination, diagnosis or treatment. Do not disregard or delay seeking medical advice based on information on this site. If you have concerns, always seek the advice of one of the Renal Team

at Addenbrooke's before starting any new treatment or making any changes to existing treatment. Medical information and the staff in the Renal Department change occasionally and while AKPA make

efforts to continually update the content on the site, some information may be out of date. To advise us of incorrect information, please email web.master@akpa.org.uk

 


© Copyright Addenbrooke's Kidney Patients Association 2006 - 2017 | Disclaimer | Please contact us on info@akpa.org.uk

AKPA is a Registered Charity, No. 277236