Contact us:  48, Montague Road,

Cambridge,

CB4 1BX

 

Email:  info@akpa.org.uk

 
 

Welcome to the Website of Addenbrooke's Kidney Patients Association

 

AKPA is a small, Cambridge-based charity run by volunteers which works to improve the quality of life for the kidney patients of Addenbrooke's Hospital in Cambridge and her satellite dialysis units. We are involved in a wide range of activities including occasional social events and talks by hospital staff on medical advances.

 

AKPA is a registered charity and over 95% of funds raised go towards helping patients.

 

 

 

 AKPA News

 

April 2020

Coronavirus and Kidney Patients


Credit: Shutterstock/LightspringAs you will know, all kidney patients are likely to be more severely affected by the coronavirus than the general public, so It is vital that they and their families take extra care with regards to the measures being given by the government and the NHS. Those with a kidney transplant are considered ‘extremely vulnerable’ and tighter guidelines apply.

 

We at AKPA would like to refer you to the up-to-date details provided by the Kidney Care UK (working with NKF, our parent national charity). The details are available from their website by clicking this link. You can also contact the NKF’s HelpLine at 0800 169 09 36.

 

Please look after yourselves, protect the NHS and stay at home unless a healthcare professional tells you otherwise.

 

 

 

May 2020

Suzi's month long bike challenge


14 weeks on from a life- saving transplant, Suzi is using the stamina she developed facing daily trials on dialysis to raise funds for AKPA, swapping the dialysis machine for an exercise bike.

 

She is searching for the strength to get on her bike to peddle the equivalent of a 2 hour, 6 times a week regime - just as she maintained on dialysis. Please give her your support!

 

Read Suzi's full story on her fundraising page: www.justgiving.com/fundraising/suzi-turton

 

 

 

January 2020

Fabulous Food Raises Funds for AKPA


The proprietors of Lally’s News on Mill Road in Cambridge once again used their shop front to host a fundraising effort for AKPA during the annual Mill Road Winter Fair.

 

Their food stall attracted a constant stream of customers to the delicious selection of bread pakoras, samosas, chicken curry, paneer curry and chickpea curry. The chickpea curry in particular has become a favourite with locals who come back for it every year.

 

The family, Raj, Amrik, William and Saira Gharu, all pull together. With Amrik and Saira doing the cooking while William runs the shop and Raj sells the food from the front stall. They also hold a raffle with various donated prizes.

 

This food stall has been a regular event for many years, and a part of the family’s long term support for AKPA. William Gharu received dialysis for many years and recently had a kidney transplant.

 

However, this may be the last year as they are planning to move – if so, it’s nice that they raised the highest amount ever, a whopping £1,425.

 

Our thanks to all the Gharu family for their wonderful fundraising efforts.

 

 

 

July 2019

Patient Suggestion Leads to Development of Potassium Test Kit


• Cambridge University spin out company wins funding prize

• Potential impact on tens of millions of people worldwide

• Initial research funded by charities including AKPA

 

A fast, accurate and low-cost test for blood potassium levels, which can be used at home and has the potential to improve the safety, health and lifestyle of tens of millions of people worldwide, is being developed by Kalium Diagnostics.

 

Kalium, a Cambridge University spin out company has won the £25,000 Armourers & Brasiers Venture Prize to support the commercialisation of its materials science research.

 

Kidney diseases, as well as heart disease and treatments for high blood pressure, can be associated with potentially dangerous abnormalities of bodily potassium levels. Maintenance of potassium levels, within defined limits, is crucial to health as severe high or indeed low potassium can lead to heart rhythm abnormalities and sudden death.

 

“Currently, there is no medically approved, accurate blood potassium test available for use outside of hospital or centralised lab settings,” explained Professor Fiona Karet, a co-founder of Kalium, and Professor of Nephrology at the University of Cambridge. “This deprives millions of people with renal or cardio-vascular conditions, and their healthcare teams, of the opportunity to monitor and improve their health and well-being.”

 

“This ‘home test’ idea originated from patients at Addenbrooke’s Hospital who were asking to monitor their own blood potassium levels,” said Professor Karet. “We took this on board and are now developing a test-kit that enables blood electrolyte measurement in a small finger prick drop of blood.”

 

The Kalium test kit will function in a similar way to a glucometer commonly used by diabetics. It will comprise of an electronic reader linked to a smartphone, plus a single use disposable test-strip. This kit will be used by patients themselves, giving them the type of control over their lives and diets that millions of diabetics have enjoyed for decades. It can also be used by GPs and specialists who need a quick and convenient check of the patient’s potassium to better manage clinical decisions. And companies developing new medicines could also benefit from having the device available in clinical trials.

 

The platform technology is based on miniaturised electrochemical sensing and will enable both healthcare providers and patients to obtain results instantly with hospitalgrade accuracy at the point-of-care or at home. This will allow them to take action to reduce health risks.

 

“In the community, patients are currently dependent on trips to a hospital or community blood-taking services and centralised lab-based testing, and these are associated with inconvenience and a delay in obtaining results,” explained Professor Karet.

 

Patient groups that can be expected to benefit most from a new home test include dialysis and pre-dialysis chronic kidney disease patients, as well as those with inherited kidney disorders. Others include renal transplant recipients on immunosuppressants as well as some patients with severe eating disorders and intestinal failure as well as up to 25 million patients worldwide on commonly used medications such as ACE inhibitors or diuretics, which affect potassium.

 

Kalium, was launched last year with the project originating at the University of Cambridge, in a collaborative effort between researchers in the Cambridge Institute for Medical Research and the Department of Chemistry. “The £25,000 prize will help buy critical equipment needed to address key technical challenges in commercialising the research,” said Professor Bill Bonfield CBE FRS, chairman of the Armourers and Brasiers Venture Prize judging panel. “Our prize looks to encourage scientific entrepreneurship in the UK and provides funding to help innovative developments like this realise their potential.”

 

The main initial funding that enabled the work to get off the ground came to the University of Cambridge from Kidney Research UK, with other contributions from Addenbrooke's Kidney Patients Association, Addenbrooke's Charitable Trust, Cambridge Enterprise, The Babraham Research Campus Accelerate@Babraham programme, Accelerate Cambridge and The Wellcome Trust Developing Concept Fund.

 

 

Find more news from AKPA at www.akpa.org.uk/news

 

 

 

 AKPA Newsletter

 

The latest copy of our newsletter, Newsflash:

 

 

(Please click to download a copy)

 

 

More news: www.akpa.org.uk/news

 

 

 

 

 Our Latest Fundraisers

 

December 2019

Lucy's Cambridge Half Marathon


"My sister has had two kidney transplants at Addenbrooke's Hospital.

 

My dad donated his kidney to her when she was 17 years old and it lasted for 19 years, and in 2018 my brother donated his kidney to her.

 

Addenbrooke's Hospital and their Kidney Patients Association have been amazing throughout it all. They gave all three of them such good care and supported us all throughout the process.

 

We have been extremely lucky that my family have been matches for my sister and that her body has accepted her new kidneys and all three of them are now healthy and doing well. I therefore want to raise funds for Addenbrooke's Kidney Patients Association so that others can benefit from the amazing support they provide, just like we did."

 

Please visit Lucy's page: www.justgiving.com/fundraising/Lucy-Worboys

 

 

 

December 2019

Nicola's Kidney and Sepsis Awareness


Nicola Wakeling is raising money for AKPA. Her efforts will help to ensure that we can continue to support local kidney patients.

 

 

 

Please visit Nicola's fundraising page: www.justgiving.com/fundraising/Nicola-Wakeling1

 

 

 

Find details of all our fundraising superstars at www.akpa.org.uk/fundraising/superstars.htm

 

 

 

   

 

 

 
 

 

The AKPA website is provided by Addenbrooke's Kidney Patients for Addenbrooke's Kidney Patients and is for information purposes only. It should not be a substitute for professional medical advice,

examination, diagnosis or treatment. Do not disregard or delay seeking medical advice based on information on this site. If you have concerns, always seek the advice of one of the Renal Team

at Addenbrooke's before starting any new treatment or making any changes to existing treatment. Medical information and the staff in the Renal Department change occasionally and while AKPA make

efforts to continually update the content on the site, some information may be out of date. To advise us of incorrect information, please email web.master@akpa.org.uk

 


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